G-Tubes anyone?

[mswizard]

was wondering if anyone has had to deal with them? Emmy's apt Friday went real bad (I Knew it would) She isn't growing and now she isn't even on the growth chart for DS. She has only gained 4 ounces in 3 months. I have to bring her in Tuesday for blood work to check her thyroid and some other things. It may be because she can't regulate her body temp and the shivering uses up all the calories she takes in, it could be her thyroid, it could be a million and one things. I was chatting with some mums and dads online that have had to deal with G-tubes for years! That scares me!..I can't see Emmy getting fed through a tube everyday for God knows how long...it would be such a huge step backwards for her. At her OT session Thursday Tina noticed Emmy was real yellow, I noticed it too so we are having that checked as well, I don't get it...she eats...she don't have the runs..I just don't get it. OH..and to top it all off, my neice called me today to tell me my mom disappeared today, just got in her car and left..Mom hasn't been able to drive in almost a year!

[mswizard]

oops! I hit the submit button.

Any how, we found mom, she drove herself to the store! (My little sister went into re-hab 4 days ago and mom is kinda lost without her!)

[angelwithin]

hiya wiz

my son had a NG-tube (through the nose) for 8 weeks - its real scarey the first few times you put them in but you'll be amazed how quickly you adapt and become an expert at changing them, cleaning and syringing in the feeds, i even trained a new nurse on the ward how to do it ...i know its scarey unchartered waters for you but if it helps our little angel grow strong and healthy it's got to be a plus point hasnt it

fiona xx

[mswizard]

Thanx Angel,
I think where my problem is with all of this..WHY mention placing a G-tube in the first place? She eats and eats well...I don't understand how a tube is going to stop her from being cold all the time or make her gain weight where just plain old eating doesn't. Do they feed her like 5 million( Exageration I know) calories or something? And the step back I was talking about is I was also told they will have to completely RE-DO her therapy, See, I don't kno0w the why's to that either. The more I think about this the more I am hoping she has a thyroid problem and just has to be on meds for it.
Emmy only weighs 12 pounds but she doesn't look like she's starving, she has pudgy little cheeks...

[crops2dawn]

Wiz, sorry I cant help with your question but just wanted you know I have her in my daily prayers.... I just hope you get some good news soon... cause you all sure have had your plates full!!!! thats for sure! xoxoxo hugs to you and yours!

[GrannyScraps]

I'm sorry I don't have any words of wisdom for you.... but I do know it's scary when our little ones aren't doing well.... I can send you some {{hugs}} and get you and Emmy on my prayer list....

[pkdoll]

I used to work for a pediatric gastroenterologist and we had many children that came in with G-tubes. It can be extremely scary for a person. But like most things, once you learn about it and work with it you will be amazed at how routine it becomes. It's very important to keep it clean tho. To prevent any type of infection. Sometimes children just don't get the nutrients they need even tho they eat good. It's a breakdown in their little systems. Don't worry too much about it Wiz-it will be easier than you think. But it is inconvenient that's for sure. I feel so bad that she is having these problems. She is such a sweetheart and has such an amazing mom!! Hopefully things will turn out for the better and they can find out why she isn't gaining weight. I will continue to pray for Emmy and you and know that you are in my thoughts daily.

[Granny]

Sorry to hear all this Wiz... Hang in there girl! Pulling for ya.

[fourfoxes]

I've added you and Little Emmy to my prayer chain. Don't lose faith. Try to remember that God doesn't give us more than we can handle. (I know, easier said than done)

Sending you both BIG {{HUGS}}

[rosana brito]

Wiz !! i love ya

Wiz, has much faith in God, who nothing of tube to need to use ok
Ours prayers is every day for Emmy, and not if it worries that it does not gain weight, the times and better not to fatten in such a way wise person?
OMG! As I wanted to be close to you, for helping it in everything what it was necessary, it donates to me to be far from you Wiz, but it knows that Emmy this of our hearts inside, e much love and affection for it ok

It is in Peace, God Blesses

Kisses
ro

[*eng*]

I can't offer any answers, just want you to know that I'm amongst the many willing everything to turn out fine. I am sure with your love and determination it will xxxx

[makeyesup]

Oh Wiz, sorry to hear there have been more troubles coming your way. You are all in my prayers and will stay there always.

[O2BNGdHope]

Wiz, I don't have any experience with G-tubes but I know a lot about worrying. I know that you have to take care of your emotional health, too. I know you can't stop worrying but take some time to rest yourself. I know you are heart-weary but don't let your body get weary, too. Your life is in turmoil right now but you must take care of yourself. Eat right, take your vitamins and get plenty of rest......or we'll sic Dr. Marion on you!

[wolvsie35]

My dear GF!!!, I had no clue... I am so sorry, please keep me informed, and we have added Em to our nightly prayers as well...She doesn't need all this and neither do you...Call me if you need to vent...k? Love ya...

[Marion]

I am so sorry Liz, that you have to go through all of this. Just know that we are with you!