To My SBM Family
I know this is a long post but please bear with me...
I am having big time problems in my family right now and I need to ask for your prayers..
I am posting links to 2 pages I did for my Grandson Andrew in October..some of you know his story already but for those who dont...if you look at these it will show you his background..
Page 1: http://www.scrapbookmax.com/gallery/...00&ppuser=2747
Andrew has had private duty nurses since his accident..at present we have them 20 hrs a day..from 5 PM to 9 PM the family takes care of him..Andrew can do nothing for himself..I hate the word "Vegetable" that is used to describe those in his condition...but that is how he is.He will be 15 yrs old on March 27th..he has developed scholosis due to his accident..his body is almost in an "S" shape now..all of his organs are being shifted ..as his body continues to do this his lungs will eventally collaspe...as this happens he will need more nursing care..he stopped breathing about 2 weeks ago and we had to call 911.. thank God before they got here his nurse had already got him breathing again..it was only a short time thing..He has almost constant seizures and always some type of respiratory problem..
Alabama Medicaid pays for Andrews nursing care and all of his medical needs..however one of their guidelines for the care and number of hrs he can get..are based on the ability of his caregiver..(Me as I have custody of him at the present time) to take care of him the hrs we dont have nurses...Medicaid says that since my health has gotten worse I am not able to take care of him and therfore dont meet the guidelines .. they want to stop his nurses..they say we can put him in a nursing home but I will NEVER allow that..he would die in a week because they are not equipped to take care of a patient that needs the CONSTANT care that Andrew requires..we have appealed their decision and are now waiting on a hearing..we have Childrens Advocacy attorneys and are fighting with all the resources we have..they also say we have to have a legal paper signed and in his chart which says
if he stops breathing again...the nurses are to do everything to bring him back..or they just make him as comfortable as possible and let him go...I am pulled is no many directions about this decision I cant find the courage to make it..
Please pray that medicaid wont take his hours away and that we can make the right decision for Andrew..the one that is best for him and not for us..We have all just witnessed the power of prayer with our Mary Ann...I know God is our Best Resource..Thank you all so much..Love to all jazzieal...Linda