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jazzieal
05-06-2008, 12:00 AM
Well my friends..Medicaid is threating to cut Andrews nursing hours again and this time we have a hearing date set..first time for that..its on May 12th..the Alabama Medicaid laws are so messed up..the law says that the caregiver (me) has to be able to take care of Andrew my 4hrs and they say because of my health I cant ..but then they say if she is able to take care of him for 4 hrs why not for 8 or 12..the childrens advocacy lawyer is coming down tomorrow to visit with Andrews doctor and with the director of the nursing agency then they are coming here to meet Andrew and I..they would like to cut his hours out all together and us put him in a nursing home..I will never do that..he would die in a week..I know it has happened before with a child like Andrew...so once again Im asking for all your prayers....I know they reach heaven and thats the only place any help can come from...all of your prayers stopped them before and I know they will again...thanks everyone..Love to all :)

Vanessa
05-06-2008, 02:28 AM
That is terrible Jazz. I hope they do not get away with it.

At the end of the day, if Andrew needs help and it is covered by medical aid then he should be getting it covered, regardless of who the carer is. Insurance companies the world over are very much the same. They are so willing to take with the one hand and screw you with the other. What we tend to find here in the UK is that radio publicity goes a long way to sorting out insurance claims. They don't like negative publicity.

Good Luck with it anyway honey.

scrappyaggie48
05-06-2008, 03:34 AM
Hi Jazz

I am sorry to hear about that , my prayers and thoughts are with.

Hope it works out well for you.

http://www.scrapbookmax.com/forums/attachment.php?attachmentid=19571&d=1204520957

nanwu
05-06-2008, 04:13 AM
hey Jaz, my thoughts are with you and Andrew, I am sure with all of us thinking and praying it will work out

twpclerk
05-06-2008, 04:29 AM
Jaz, I'm so sorry to here of your troubles. My prayers are with you too, hang in there. HUGS!

Smile
05-06-2008, 04:44 AM
Hello Jazz: I am so sorry that you half to go through this again. The government cares only about cut backs in dollar's and cents and not about the love and care of our children. Yes we will indeed pray for you and Andrew and will always be here for you both. You have been the most wonderful, caring person to Andrew and there isn't too many people who has given so much of there life. And as Andrew is blessed to have you , you also have been blessed with his love. Hang in there and please try and take care of your self also.......xoxo....Lois

pkdoll
05-06-2008, 06:28 AM
Oh Jazz-not again. We all know it comes down to dollars and cents. Why would they take him from a home that they know he is being well cared for and put him in a nursing home with strangers that don't care the same as a family member? To most in a nursing home it is just a job, they don't have the connection or bonding that a family has to this child. I will pray for you and hopefully they will see how well cared for Andrew is and let him stay. He just lost his mother, so why would they want to take the rest of his family away from him?? Take care of yourself too Jazz-you will need all your strength on this one. Love ya!

makeyesup
05-06-2008, 07:15 AM
Prayers are coming your way. Just when you start getting well and settling in, this has to happen. Government should learn and listen before they take action. Know how much love and care you can give Andrew and they just have to see that this is best for them, not take him to strangers.

mint
05-06-2008, 07:37 AM
Jazz I am so sorry you have so much to bear. I will pray for you bought.

OnieRN
05-06-2008, 08:21 AM
Good Grief! Jazz, you know you have all of our prayers with you and Andrew! You've been through so much and here they go again, trying to upset your lives. It's just not far! :(

We Love You Jazz and Andrew!!!!

Granny
05-06-2008, 12:51 PM
You're in my prayers Jazz. And remember...

"The Lord giveth.... The government taketh away!"

:rolleyes:

fourfoxes
05-06-2008, 03:48 PM
Jazz you and Andrew are always in my thoughts and prayers. I know what you mean about the system, my cousin was a social worker in Alabama for years and she used to tell us how bad it was. I'm so sorry you have to go through this again.

((BIG HUGS))

*eng*
05-06-2008, 03:53 PM
Jazz, you will win, what a thing to have thrown back again.They really are dealing with this in the most appalling insensative manner. My biggest wish is that these so called experts have to deal with situations hands on ...I bet they wouldn't be able to argue their case then....barstewards. Lov you Jazz xxxx

eye
05-06-2008, 03:57 PM
The strangest thing is ---it would cost more to keep him in anursing home then if he was at home with you.What are they thinking.You need him with you Jazz and God will watch over you both and the power of prayer has helped out alot.Buckets of prayer are heading your way.:)

sacannon
05-06-2008, 04:47 PM
Oh man, not again! This just isn't fair. Andrew is so much better off right where he is, where he is loved. A nursing home isn't going to give him that. Hang in there Jazz, we are all here for you!

EclecticDiva
05-06-2008, 07:44 PM
Prayers are with you ..

crops2dawn
05-07-2008, 04:03 PM
I cant believe they are putting you through this again....
Dang people!!!! (actually I am saying worse things) but I must be nice on here...:)
My prayers are with your family ALWAYS!!!

omajo
05-07-2008, 09:24 PM
ooh Jazz, be strong, my prayers for Andrew and yourself!
oxox

Marion
05-07-2008, 09:57 PM
Same here Jazz, prayers going up for you!

Pink Lollipop
05-08-2008, 12:10 AM
Dear Jazz,

Be strong... we will pray for you and Andrew. May God bless that Andrew will be able to stay where he should be and all the goods is coming your way. :)

RachellIowa
05-08-2008, 08:08 PM
I feel for you and Andrew as the states seem to want to for get there are those who are medically needy, but they just want to keep taking from them, my pryers are withyou and bless you for not giving in to them.

kimbob
05-11-2008, 07:36 AM
:( ARRGHH, just when things were looking up again! BLUH! Jazzy you know our prayers from WAY down here are with you and your family ALWAYS-
Sending hugs and extra prayers tonight-
BIG HUGS

O2BNGdHope
05-11-2008, 08:01 PM
Aww, Jazz. Why can't they ever seem to leave a good thing alone? All those kids living in terrible, abusive homes and they want to take Andrew from such a loving home? Where is their logic? I hope and pray that things will turn out right!

jazzieal
05-13-2008, 10:03 PM
Thanks everyone for your prayers..I got a call Friday night about 9 pm from the lawyer..we had asked for a continuance because Andrew is going to childrens hospital for evaluations..last week we carried him to neurology..July 28 we have an appointment with the pulmonary clinic..Medicaid has decided to wait until after all the drs visits are done to have a hearing....they want us to also have work up in orthopedics & gastrology..Andrews Dr. here has told us he thinks Andrew is in his last stages but only God knows that...so we continue with the 20 hrs of nursing care we have now for how long I don't know...I do believe God intervened in this once again...and because of all of your prayers...thanks again and continue to remember Andrew..

Vanessa
05-14-2008, 02:43 AM
..thanks again and continue to remember Andrew..

Jazz, I am sorry to hear that your little boy is so terribly ill. Reading through your postings, I get the impression that he will not get any better. There must be a law precedent somewhere that gives the child the right to stay within a loving environment, especially a child that is terminal, rather than being taken out of a loving environment and placed somewhere cold and clinical that is likely to be extremely emotionally stressful for the child and even more detrimental to his/her wellbeing. There must also be some case law that says that the state does not have the right to discriminate against you for being ill yourself, by saying that you are incapable of nurturing your child and thereby penalise the child for being ill by effectively taking him away. Your lawyer, must know or if he does not he should certainly have paralegals who can do the research to find out. Besides why can't they provide some sort of home nursing help for you both to enable you to make the most of your time with Andrew? This sort of penny pinching wrangling, must be having a detrimental effect on your health too, which is something that your son would pick up on. Children are very perceptive to moods. Keep fighting hon. I can't say you will win in the end-that depends on your lawyer and the compassion of others, but my thoughts are with you and I hope they see sense instead of dollar signs.

eye
05-14-2008, 03:08 AM
Thanks everyone for your prayers..I got a call Friday night about 9 pm from the lawyer..we had asked for a continuance because Andrew is going to childrens hospital for evaluations..last week we carried him to neurology..July 28 we have an appointment with the pulmonary clinic..Medicaid has decided to wait until after all the drs visits are done to have a hearing....they want us to also have work up in orthopedics & gastrology..Andrews Dr. here has told us he thinks Andrew is in his last stages but only God knows that...so we continue with the 20 hrs of nursing care we have now for how long I don't know...I do believe God intervened in this once again...and because of all of your prayers...thanks again and continue to remember Andrew..

Payers are so pwerful.Your never without them xo.I do hope all goes well.

Gotart
05-14-2008, 01:13 PM
Jazz,
My heart breaks for you. I know how much we love our special Grandchildren.. Medicaid can be such a nightmare. Sending you & Andrew special Prayers.... Terry

OnieRN
05-14-2008, 01:37 PM
Jazz, My heart just breaks for you! You've been through so much. I hate to hear that Andrew is so sick again but I'm glad that the case workers and them backed off for awhile. Just remember, you do have all of us praying for you and Andrew.

sacannon
05-14-2008, 02:36 PM
Oh Jazz, I hate hearing this about Andrew. I am still wishing the best for all of you. I am glad you got a little reprieve from the case workers though.

pkdoll
05-14-2008, 06:48 PM
Jazz you know how I feel. My prayers will be going at you and Andrew with hyperspeed effect!! Love you girl!